We don’t know what’s going on with Sam. Here’s what we do know:
- His temperature is shifting all over the place: hot, cold, warm
- He’s having “spells” — they think he might be having seizures
- His blood gases have gotten bad and his vent settings are way up
- He’s not easily calmed down and settled
He’s getting another echocardiogram to see if it’s his heart. A 24-hour EEG has been ordered to monitor his brain activity so they can better determine if these spells are indeed seizures.
The only positive news we have right now is that they’re started feeds again: 0.5mL/hour. Because of everything else going on, they most likely will not increase them much right now.
The other thing is that Sam does love getting his body massages that I’ve been giving him. He visibly relaxes and lets me massage his arms, legs, head, bit of his chest. Even the nurse commented on how much he responds to me. At least I can give him some pleasure.
In other news, Sebastien, in the last two nights, slept for 6.5 hours and 5 hours.