What’s smaller than a baby step?

That’s what we’re making right now.

Sam’s morphine has been weaned from 6 to 5. The vent is now back on auto mode, which means he’s doing all the work. It also gives him a backup though and will kick in if he doesn’t breathe.

He’s still adjusting to the decreased pain meds…he needed an extra dose of Ativan last night to help calm him down. And this morning for his eye exam (to check on the progress of his laser surgery), he had a pretty nasty desat.

There’s also debate today about the vent. His current breathing tube is slighty too small, causing him to breathe around it. (it does sound really cute b/c there’s a slight quacking sound, and I pretend it’s him cooing at me or snoring when he’s sleeping). The thought is that since there’s such a gap, the tube/vent is sort of acting like CPAP, so they might try him out again on it tomorrow. The nurse today though doesn’t want him to get switched — she thinks Sam needs a bit more time to rest and recover. The doctor who will make that decision is the first doctor Sam had, the one who got him through his first 3 weeks of life. We trust him, and I’m curious what he’s going to do the next several weeks on his rotation. Will he be able to get him just as healthy and stable as he did those first three weeks. After all, we attribute one of the facts that Sam is here because he made it through those crucial first weeks before getting sick.

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8 thoughts on “What’s smaller than a baby step?

  1. Imelda says:

    Good to hear he will have that first doc again. I will pray that he makes giant strides while this doc is on his watch. Even though the forward steps are inches are like climbing a mountain. Keep faith an maintain that fervor you have. You are definitely one strong momma.

  2. tpowers@bellsouth.net says:

    So glad to hear he’s doing better. I know you can’t wait until he starts making leaps in recovery again. Glad you have you have confidence in this doctor.

  3. Sam is still here because so many people have prayed for him and GOD answered our prayers. I can’t wait to hug and kiss that boy.

  4. I just read your blog for the first time. You are very strong and so is your boy. I also had a severe IUGR baby, and she is now eleven months old. I will be following your journey and praying for you guys and your Samuel. He is a fighter and will continue to fight.

  5. Leslie says:

    When Bobby had a huge leak around his ET tube, the doctors agreed to give him a shot at CPAP but expressed relative certainty that he’d be reintubated within 24 hrs. He never was! That was our big step in healing, and I hope tyhis is Sam’s as well! You’re doing a great job, Mama! Keep fighting for that boy like you have from the very start…he’s amazing!

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