So Sam might be back on the vent today, but he looks GREAT. Really, he does. The best we’ve seen him look in a long time.
He did clearly need the break. He looks rested. He was bright eyed and awake for me today, which was so good to see since it’s been so long.
For now, the doctors aren’t making any changes at all: not going to wean the morphine (he’s in a happy place right now), not going to rush the vent. So far his blood gases have been good though so maybe they’ll focus on just weaning the pressure. If we can get the pressure low enough, then moving him back to CPAP won’t be so difficult. Also, considering how much weight he’s lost in the last couple of days, hopefully by then his belly will be nice and flat again so he won’t need the high pressure any longer.
My favorite cardiologist came by to visit as well. She talked to the interventionalist and he wonders if we should even rush him into the cath lab and into heart surgery….he’s speculating that maybe Sam can live with his pulmonary hypertension and PVS, that he may not need help. Maybe?! Of course, he’ll eventually need his VSD closed, so when they go in to do that, if something else should be done, it could all be done at once. Regardless, I like the way this doctor thinks! This same doctor is having Sebastien wait another 8 months to watch his PDA; it’s still large at his cardiology appointment last week. If in 8 months it’s still there, then they’ll consider closing it.