Surgery is scheduled again

Sam’s taken a bad turn again. Poor, poor baby. 😦

His belly is still large; his respiratory requirements have exponentially increased. We got called at midnight last night — he was put back on the vent after a particularly bad spell that required chest compressions and bagging. I had just visited with him only a couple hours prior, and he looked so good. There wasn’t a mucus plug to blame this time.

As of this morning, his blood gas numbers are going in the bad direction. They would schedule him today, but they’re determined to make sure he doesn’t have an infection. None of the numbers coming back though point to that. One of the weird things is that every time he’s gotten sick before, there are lots of signs: dropping platelets, rising CRP, etc. This time, everything is normal.

The scary part is that they’re going to open him up and who knows what they’ll find. It’s exploratory surgery. What if it’s not fixable? The docs think there is a blockage of some sort, that the gas patterns stop halfway down his belly when they see them on xrays. We can only hope that it’s an easy fix so we can move on.

We talked to his primary doctor last night; he told us how difficult this type of surgery will be on him: re-intubated (no longer an issue now), that he’s going to gain a lot of weight, get bigger/more swollen.

We know he’ll have the surgery tomorrow; we don’t know what time yet.


8 thoughts on “Surgery is scheduled again

  1. Lauren says:

    Sandi, I’ve been thinking about you and will continue to keep Sam in my thoughts and prayers. I really hope that they will be able to figure out what is going on and fix it tomorrow. Sam is an amazing little boy who is a fighter just like his parents.

  2. says:

    I’m saying prayers for you all. I know this is so stressful. Hopefully the surgery will solve the mystery and that he will begin to heal and grow quickly afterward. He’s come this far, that little boy is very special.

  3. Rebecca from FF says:

    Praying for Sam!!! He’s shown himself to be such a fighter so far – I know he’ll keeping on going!! (((hugs)))

  4. cheryl says:

    Heya Sam! What’s up? Sorry to hear you’re not feelin’ well again, lil dude! Know that you have a whole bunch of us out here pullin’ for you and waiting to hear some good news from you soon!

  5. Mom says:

    We will keep little Samuel up in our thoughts and prayers. It is so strange that he got sick again. He has been so well the past few weeks except for the swollen belly. In the pictures we saw, he looked so well.

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